Together with ‘Strength of Character,’ we’ll get through COVID-19 as we continue to support children with Rare Diseases. You can help, please donate here.

Grant Guidelines


Our philosophy is to support those with the rarest diseases in Australia, especially those ineligible for support from other organisations.

We will not always be in a position to support all individual, family and community requests.

  • Please complete all sections in the online application - partial or incomplete applications cannot be presented to our Committees.
  • Funding Requirements - please provide details outlining what the funding is for and what it is expected to achieve.
  • All invoices or quotes must come directly from the supplier of the product and be valid at the time of the application for a minimum of up to six months.
  • Should your application be successful, any additional costs that have not been included can not be covered by the Foundation. 


  • The Steve Waugh Foundation (‘the Foundation’) will support children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000.
  • You must be an Australian Citizen or an Australian permanent resident of at least five years to gain assistance from the Foundation and;
    • Have a recognised rare disease as identified on ORPHANET:, or if not recognised your medical specialist must confirm the disease is rare
    • Have an Australian Medicare card
    • Have already made an application for government funding assistance for the requested item, eg the NDIS 
    • The rare disease has been formally and officially diagnosed by a Paediatrician or other Medical Specialist
    • You have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or other medical specialist
    • You have and can provide medical, health and other documentation or support material required as part of your application


  • A Medical Specialist is any doctor (not a GP), who has qualified in a specialty, e.g. MBBS. Allied health professionals, ie social workers, physiotherapists, psychologists, occupational therapists, speech therapist etc are not classified as Medical Specialists.


The Foundation will consider funding:

  • Equipment
  • Mobility Aids 
  • Communication Devices
  • Therapy
  • Treatment 
  • Some minor house renovations
  • Items that improve the quality of life for the applicant and their family



The Foundation is not currently able to provide financial assistance for:

  • Purchase of new or used vehicles or their modification
  • Major home modifications e.g. swimming pools, built-in spas
  • Rent, mortgage payments, household utilities, general living expenses 
  • Conferences, meetings, travel, accommodation - local and international
  • Costs associated with doctor and specialist appointments and surgeries  
  • Research and Clinical Trials
  • Assistance Dogs


In line with our philosophy to fund items that are ineligible to be funded from other sources you must identify:

  • Other eligible sources of funding you have tried
  • Supports received from other charitable organisations
  • Supports received previously from the Steve Waugh Foundation