Our philosophy is to support those with the rarest diseases in Australia, especially those ineligible for support from other organisations.
We will not always be in a position to support all individual, family and community requests.
- Please complete all sections in the online application - partial or incomplete applications cannot be presented to our Committees.
- Funding Requirements - please provide details outlining what the funding is for and what it is expected to achieve.
- All invoices or quotes must come directly from the supplier of the product and be valid at the time of the application for a minimum of up to six months.
- Should your application be successful, any additional costs that have not been included can not be covered by the Foundation.
CRITERIA FOR FUNDING
- The Steve Waugh Foundation (‘the Foundation’) will support children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000.
- You must be an Australian Citizen or an Australian permanent resident of at least five years to gain assistance from the Foundation and;
- Have a recognised rare disease as identified on ORPHANET: www.orpha.net, or if not recognised your medical specialist must confirm the disease is rare
- Have an Australian Medicare card
- Have already made an application for government funding assistance for the requested item, eg the NDIS
- The rare disease has been formally and officially diagnosed by a Paediatrician or other Medical Specialist
- You have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or other medical specialist
- You have and can provide medical, health and other documentation or support material required as part of your application
- A Medical Specialist is any doctor (not a GP), who has qualified in a specialty, e.g. MBBS. Allied health professionals, ie social workers, physiotherapists, psychologists, occupational therapists, speech therapist etc are not classified as Medical Specialists.
WHAT THE FOUNDATION WILL FUND
The Foundation will consider funding:
- Mobility Aids
- Communication Devices
- Some minor house renovations
- Items that improve the quality of life for the applicant and their family
WHAT THE FOUNDATION DOES NOT FUND
The Foundation is not currently able to provide financial assistance for:
- Purchase of new or used vehicles or their modification
- Major home modifications e.g. swimming pools, built-in spas
- Rent, mortgage payments, household utilities, general living expenses
- Conferences, meetings, travel, accommodation - local and international
- Costs associated with doctor and specialist appointments and surgeries
- Research and Clinical Trials
- Assistance Dogs
In line with our philosophy to fund items that are ineligible to be funded from other sources you must identify:
- Other eligible sources of funding you have tried
- Supports received from other charitable organisations
- Supports received previously from the Steve Waugh Foundation