Together with ‘Strength of Character,’ we’ll get through COVID-19 as we continue to support children with Rare Diseases. You can help, please donate here.


How to Apply 

1. Complete the online form under Grants - APPLY

2. Documentation Required

Once we assess disease rarity, we will email you (please check junk email) requesting you:

a. Evidence of citizenship, or residency of at least 5 years

b. A quote for the product or service being requested; and

c. Tax returns and payslips for all income earners in the household

Send to:

3. Medical Specialist Recommendation

We will email your Medical Specialist (not GP or therapist) requesting their endorsement of the service or item you are requesting. Please make sure they are aware of your grant application and the requirement of them to answer the questions emailed to them.

4. Grant Assessment

After you have provided all requested documents, your application will be assessed and presented to our committees.

5. Outcome Notification

Outcome of application can take up to 12 weeks post each round; eg. end of March, June and September.