Together with ‘Strength of Character,’ we’ll get through COVID-19 as we continue to support children with Rare Diseases. You can help, please donate here.


1. Please read the Guidelines for Funding. This clarifies who we fund and what we fund and will save you time in applying. 

2. Check rare disease prevalence on and enter this in the online application form.

3. Ensure the product or service is something we fund. 

4. Obtain at least one written quote for the product or service.

5. Inform your Medical Specialist (not a General Practitioner or Therapist) that you are applying for a Grant as you will need their written support that the disease is rare and the product or service will assist you in managing. 

6. Gather citizenship/residency (e.g. Passport, colour copy of Medicare Card), product/service quote, tax return and pay evidence for all income earners in your household.

7. Allow yourself enough time to complete the form in one sitting as it does not save. 

Please contact us if you have any difficulties.

Telephone: 1300 66 99 35