FAQ

WHO MAKES THE DECISION ON MY APPLICATION?

Every application is reviewed by the Foundation’s two Committees: the Grants Committee and our Medical Health Advisory Committee, who provide advice on a case-by-case basis.

WHAT WILL HAPPEN AFTER I SUBMIT MY APPLICATION?

If your Stage One application is successful and you have then successfully submitted all documentation required for Stage Two of the application, all submissions will be reviewed after the close of the Grant Round. A review period of six (6) to eight (8) weeks occurs where all applications are collated, reviewed by the Medical Health Advisory Committee and assessed by the Grants Committee.

You may receive a request for additional information so that we can determine your eligibility and assess your application more closely.

The Foundation will notify applicants if their grant application has been successful.

Successful grant applicants will be required to complete a “Successful Applicant Agreement”, “Media Consent Form” and supply a current photograph of the applicant.

IF I DO NOT QUALIFY FOR FUNDING CAN THE FOUNDATION HELP ME GET FUNDING FROM OTHER ORGANISATIONS?

We are not in a position to fulfil a fund seeking role for others but we do review every application that we receive and aim to help as many of the children/young people and their families that apply to our Foundation as possible. 

WHAT SHOULD I DO IF MY SITUATION IS AN EMERGENCY? 

The Foundation is committed to doing what we can for those with the rarest diseases and who are in need of help. However, we are not a crisis management service. Some cases can be reviewed independently but the Foundation does need to take time to comply with its own process and policies when approving funding. It will take a minimum of six (6) weeks from the close of applications for our committees to review and allocate funding. From time to time this process may take longer.

WHAT DON'T YOU FUND?

There are a number of items which the Foundation does not provide financial assistance for. Please visit our 'Guidelines for Funding' page to find out more.

 

I NEED HELP TO COMPLETE THE APPLICATION. WHAT SHOULD I DO?

  • Read the instructions carefully.

  • Contact your Medical Specialist, Paediatrician or Geneticist for help.

  • Ask a Social Worker, friend or relative to help you.

  • If there is no one to assist you, please contact the Foundation for help.