‘Somewhere to turn’ for children and young adults with rare diseases. Support us today by donating here.

Medical Health Advisory Committee

Our expert Medical Health Advisory Committee (MHAC) skilfully assist us to assess each individual grant application, make informed decisions, and verify that our support will make a genuine difference to the children and families who have requested our support. The MHAC is comprised of:

Professor Tracy Dudding-Byth BMed, FRACP, PhD, AM

Clinical Geneticist, Director of the NSW Genetics of Learning Disability (GOLD)

Professor Dudding-Byth is a clinical researcher and director of the NSW Genetics of Learning Disability Service. She leads two MRFF funded international research projects: the NF1 project and the FaceMatch project. Additionally, Tracy was a co-founder of Rare Voices Australia, an organization she established in 2012 with two other mothers, inspired by her own experience raising a child with a rare disease.

Dr Felicity Collins MBBS, FRACP, HGSA 

Clinical Geneticist, Clinical Genetics Unit, Medical Genomics Department, Royal Prince Alfred Hospital, Missenden Rd, Camperdown NSW

Professor Elizabeth Elliott AM, FAHMS, MD, MPhil, MBBS, FRACP, FRCPCH, FRCP 

Professor of Paediatrics and Child Health, Sydney Medical School, University of Sydney; Consultant Paediatrician, Sydney Children’s Hospitals Network (Westmead); NHMRC Medical Research Future Fund Practitioner Fellow; Founder/Director, Australian Paediatric Surveillance Unit; Co-Director NHMRC Centre of Excellence in Foetal Alcohol Spectrum Disorder; Co-Director Care and Intervention for Children and Adolescents with Drug and Alcohol Problems