Grant Recipients

Since 2005, we have supported over 600 families, thanks to the generous support of our Patrons, sponsors and supporters. Here are just a few of their stories. 


{recipient name} Hey

Hi my name is Alexandria.

I am 14 years old.

I like to Abseiling! This year I'm learning rock climbing!.

I am one of only very few people in the world living with ATYPICAL INFANTILE NEUROAXONAL DYSTROPHY (INAD)/PLAN.

The Steve Waugh Foundation have helped me by providing a pool hoist and installation.

Read my story

{recipient name} Hello

Hi my name is Abbie.

I am 25 years old.

I like to go to the movies. It lets me escape from my thoughts, environments and even people of the outside world..

I am one of only a handful of people in the world living with Congenital Panhypopituitarism.

The Steve Waugh Foundation have helped me by providing medication, chiropractic and psychotherapy sessions, and supported Mum and I to attend a conference about her disease 2014.

Read my story

{recipient name} Hey

Hi my name is Charlotte.

I am 9 years old.

I like to play in water. I can spend all day in the bath and have made a few indoor floods leaving the taps on – OOPS!.

I am one of only very few people in the world living with 2Q32 DELETION SYNDROME.

The Steve Waugh Foundation have helped me by providing speech and occupational therapy, an iPad and software..

Read my story

{recipient name} Hiya

Hi my name is Cooper.

I am 12 years old.

I like to play soccer, ride on my scooter, walking my dog and keeping my family organised. .

I am one of only a handful of people in the world living with MOSAIC TRISOMY 13.

The Steve Waugh Foundation have helped me by providing speech therapy for 12 months.

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{recipient name} Hey

Hi my name is Jason.

I am 12 years old.

I like to take part in the City2Surf with my Dad.

I am one of only very few in the world living with Progressive Neurodegenerative Condition with Cerebellar Atrophy.

The Steve Waugh Foundation have helped me by providing a Supa-light Wedge wheelchair.

Read my story

{recipient name} Hi

Hi my name is Mark.

I am 6 years old.

I like to Playing on my swing with dad to see how high I can go (too high is when your feet touch the roof of the porch!).

I am one of only a handful of people in the world living with PELIZEAUS-MERZBACHER DISEASE (PMD).

The Steve Waugh Foundation have helped me by providing top up funding for a Jenx Chair, shoulder supports for the Jenx Chair, a Mulholland Rocket Stander and specialised computer software..

Read my story

{recipient name} Hey

Hi my name is Jihad.

I am 16 years old.

I like to believe I can play soccer with my brothers. I dream about it..

I am one of only a small number of people in the world living with ATAXIA TELENGIECTASIA.

The Steve Waugh Foundation have helped me by funding a stand up electric wheelchair.

Read my story

{recipient name} Hiya

Hi my name is Meg.

I am 15 years old.

I like to go on holidays to the beach. I like most food but food doesn't like me. .

I am one of only very few people in the world living with 16P11.2 MICRO DELETION SYNDROME.

The Steve Waugh Foundation have helped me by providing occupational, physiotherapy and speech therapy.

Read my story

{recipient name} hey

Hi my name is Eve.

I am 5 years old.

I like to be in included in everything - as long as I'm in the middle of whatever is going on, I'm happy!.

I am one of only a small group of people in the world living with WOLF-HIRSCHHORN SYNDROME.

The Steve Waugh Foundation have helped me by providing a Thermomix to support my meals.

Read my story

{recipient name} Hey

Hi my name is Kaitlin.

I am 10 years old.

I like to go to Hospital School! My favourite subjects are kitchen garden and science..

I am one of only a few people in the world living with MUCOPOLYSACCHARIDOSIS TYPE 1 (HURLER SYNDROME).

The Steve Waugh Foundation have helped me by providing a cubby house, play equipment and lawn /ground preparation.

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{recipient name} Hiya

Hi my name is Marley.

I am 5 years old.

I like to dance and listen to music.

I am one of only very few in the world living with Trisomy chromosome 5q33 (long arm), Monosony chromosome 11q24.2 (long arm).

The Steve Waugh Foundation have helped me by providing an electric bed.

Read my story

{recipient name} G'Day

Hi my name is Jack & Ben.

I am 12 years old.

I like to eat healthy foods (Jack) and eat junk food (Ben).

I am one of only an unknown amount of cases in the world living with SWAN (Symptoms without a name).

The Steve Waugh Foundation have helped me by providing Tilt in Space chairs and more..

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{recipient name} Hey

Hi my name is Connor.

I am 16 years old.

I like to connect online with friends and play video games.

I am one of only a handful of young people in the world living with Junctional Epidermolysis Bullosa (EB).

The Steve Waugh Foundation have helped me by providing high level window tinting on our car and with an electric bed.

Read my story

{recipient name} G'Day

Hi my name is Caoimhe.

I am 11 years old.

I like to go swimming in the pool.

I am one of only small number of people in the world living with Merosin Deficient Congenital Muscular Dystrophy.

The Steve Waugh Foundation have helped me by providing a power wheelchair with a seat that rises up or down.

Read my story

{recipient name} Hiya

Hi my name is Liam.

I am 11 years old.

I like to create mischief.

I am one of only a small number of suffers in the world living with Acute Demyelinating Encephalomyopathy.

The Steve Waugh Foundation have helped me multiple times providing vital equipment to help me talk and walk for the first time..

Read my story

{recipient name} Hello

Hi my name is Shandelle.

I am 27 years old.

I like to enjoy my independence and walk my dog.

I am one of only a rare number of people in the world living with Osteogenesis Imperfect (OI).

The Steve Waugh Foundation have helped me by providing a road-registered Frontier V6 power motorised wheelchair.

Read my story

{recipient name} Hi

Hi my name is Ellie.

I am 6 years old.

I like to be where the chaos is!.

I am one of only very few people in the world living with Wolf-Hirschhorn Syndrome.

The Steve Waugh Foundation have helped me by providing Early Intervention Program fees for a specialised centre.

Read my story

{recipient name} Hello

Hi my name is Renee.

I am 23 years old.

I like to cook, go shopping and love everything pink!.

I am one of only a rare handful of people in the world living with Geleophysic Dysplasia (Dwarfism).

The Steve Waugh Foundation have helped me by providing portable oxygen cylinders every month so I can have a life outside my home.

Read my story

{recipient name} Hey

Hi my name is Daniel.

I am 19 years old.

I like to play bocce and have qualified for the next Paralympics!.

I am one of only a small number of people in the world living with Spinal Muscular Atrophy Type 2.

The Steve Waugh Foundation have helped me by providing me with a robotic arm - an Australian first..

Read my story

{recipient name} Hi

Hi my name is Holly.

I am 9 years old.

I like to be a 'dare devil' and go on rides at Luna Park.

I am one of only a small number of people in the world living with Congenital Disorder of Glycosylation Type 1a (CDG).

The Steve Waugh Foundation have helped me multiple times to help me communicate.

Read my story