The Steve Waugh Foundation is committed to a coordinated approach to the service, identification, treatment and cure of rare diseases – primarily focusing on children (0-25 years of age).

We strive to improve the quality of life for children and families affected by rare diseases.

The rare disease patient is the orphan of the health system, often without diagnosis, without treatment, without research and therefore, without reason to hope.

Families and carers of children with rare diseases experience significant psychological stress due to social isolation, unemployment, diagnostic delays, lack of information and difficulty accessing appropriate health care.

The Steve Waugh Foundation is working to help change things for children with a rare disease by giving hope, providing medicine, equipment and treatment, supporting education and research, partnering with other like agencies and organisations as well as supporting specific projects and programs. The Foundation has already supported over 200 families through generous donations from our Patrons, corporate partners and supporters. Over a million dollars has been used for medication, treatment, specialised equipment and financial support.

We invite you to join the Steve Waugh Foundation to give our children with a rare disease and their families ‘somewhere to turn’.