Although physically the size of a four year old, Courtney is over 10
years old and a big fan of Kylie Minogue. When first diagnosed,
Courtney’s life expectancy was only two to three years, and she has
already lost two of her relatives to this condition.
Prone to dangerous seizures, Courtney requires 24 hour care, is
confined to a wheelchair, and needs help with everything. Not able to
communicate, Courtney sleeps with a seizure monitor and carers must be
alert to watch for seizures. She needs an oxygen tank with her at all
times and receives medical treatment every four months.
To help give Courtney’s body much needed sensory stimulation and create
an enjoyable activity, the Steve Waugh Foundation funded a
specially-equipped outdoor spa.
In an extremely demanding routine, the spa has become a symbol of hope
for the family. It is something they can all enjoy together. Courtney
loves being in the warm water with the sun and wind on her face.