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The Australian Paediatric Surveillance Unit (APSU) is a national
resource, established in 1993 to facilitate active surveillance of
uncommon childhood diseases, complications of common diseases or
adverse effects of treatment. Diseases are chosen for their public
health significance and impact on health resources. To date, a range of
infectious, vaccine preventable, mental health, congenital and genetic
conditions and injuries have been studied. For many childhood
conditions, the APSU is the only national mechanism for data collection
in Australia.
The Steve Waugh Foundation has provided support & funding to APSU for:
Research In keeping with the mission of the Steve Waugh
Foundation to provide support to children affected by very rare
diseases and; to support the work of the Foundation by develop a
working definition for ‘rare’ and ‘very rare disease’ that can be
applied in decision-making processes by the Steve Waugh Foundation -
2009
Hosting a Media Conference to create awareness and profile
for the Australian Paediatric Surveillance Unit (APSU) who are
facilitating a National Working Committee on a National Agenda for a
coordinated effort to rare diseases in Australia. The media conference
is extended to all members of the National Working Committee, key
stakeholders and the media – February 26th 2010
Supporting & attending the Australian Paediatric
Surveillance Unit (APSU) workshop entitled: "Responding to the common
problem of rare diseases: A workshop for health professionals” -
February 27th 2010 the Australian Paediatric Surveillance Unit (APSU)
workshop entitled: "Responding to the common problem of rare diseases:
A workshop for health professionals” - February 27th 2010
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