Alysha – Hard rock chick

Alysha is happy and outgoing. She loves the Jonas Brothers, playing her new guitar and listening to rock music. She is also one of only 500 children in the world to have a very rare condition called Cleidocranial Dysostosis (CCD).

With the most extreme case diagnosed at just 6 months of age, Alysha has a deformed jaw, teeth, toes and fingers as well as hearing loss, scoliosis of the spine and is short in stature. She was born without a skull bone, has no hip rotation, cannot move normally and is in pain whenever she does. In an attempt to relieve some of the pain and correct some of her deformities, Alysha has undergone several extensive operations. With her legs beginning to slip out of her hip sockets, more surgery is the only option to prevent Alysha becoming crippled.

The Steve Waugh Foundation is privileged to be able to provide ‘somewhere to turn’ for Alysha and her family. Through generous donations from our supporters, we have committed to paying all her ongoing medical costs for the foreseeable future. The benefits are immense.

With an infectious smile and sunny outlook despite her pain, our favourite ‘rock chick’ is still grooving. Alysha has an inner strength and courage that is humbling. She lights up the room and lifts everyone around her. With an infectious smile and sunny outlook despite her pain, our favourite ‘rock chick’ is still grooving. Alysha has an inner strength and courage that is humbling. She lights up the room and lifts everyone around her.